This article was difficult for me to read (you may have to register to read it, but registration is free). I am wondering if it was for anyone else?
I get the sense the parents so desperately want their child to have the same kind of childhood that they had, just because. I couldn't help thinking that somwhere lies a guilt-driven motivation, perhaps, grounded in their child's (maybe avoidable) complication at birth, to "make up" for the CP in a big way. I may be wrong. I hope I am.
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Yes, the parents in this article made me uncomfortable, in a vague, difficult to articulate, way.
I'm all for insisting that one's child should be accomodated and able to participate in the activities around him. But there's this creeping sense that what these parents want is the pretense that nothing is different about their child, and will go to great lengths to maintain that. The "blue sky room," where the children could all go so as to not single out the kids receiving occupational therapy, seems a good example of this sort of thinking.
I don't know. That sort of thing doesn't seem fair to the other children.
lisa in Chicago
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